Remission, Rapid Responder

Today the doctor's confirmed Colin's test results and he is officially in remission with less than 0.01% cancer cells found. This means Colin is now in the next phase, consolidation!! Based on his positive prognostic factors he was placed in the low risk treatment plan. Within that treatment, he was randomized on an arm where he will receive additional chemotherapy. This phase will last for 28 days and consists of a few new drugs. Once again he was so brave today when receiving his first set of treatment for this phase. Part of his chemo was through a spinal tap (methotrexate), another part through IV (vincristine), the third through injection (PEG-Asparaginase) and the fourth orally (mercaptopurine). At this appointment he also was treated for his cough. They took an x-ray of his chest to make sure there was no infection as well as a swab test. Both of which came back fine. During our visit he had a coughing attack so he received a breathing treatment and is now on an inhaler just like Maddie.

Next appointment is on Monday for a blood check and they will check his chest again for the cough.

Maddie has been back to the Doctor because of her cough/wheezing and slight fever but the Doctor reassured us that her cough/wheezing is probably spiking right now and we should see an improvement over the next couple of days. She remains on the inhaler.

Signed tired Mommy and Daddy :)

And the Food Keeps Coming!

Thank you to all our friends, family, co-workers and friends of friends for all the meals. Since Colin's diagnosis we can count on one hand how many times we've cooked. This means so much to the Westbrook family because it's one less thing we have to worry about and it gives us more time to spend together as a family. Thank you to everyone!

Colin is back ... every morning he has each of his toys out by 9:00am and smiles/laughs more than ever. His next visit is scheduled for Thursday where we will review the results of his last bone marrow test and hopefully start his next phase of treatment.

On the Maddie front, she had her first sick visit today with Dr. Frank, her pediatrician, and she has bronchiolitis (baby bronchitis) so she is now on an inhaler to help her cough.

Off to bed ... new 9:00 rule for Mommy and Daddy.

8 Hours of Sleep

Last night Mommy and Daddy got 8 hours of sleep because Ms. Maddison Leigh slept through the night for the first time. Was it the visit from Lou Lou, no afternoon nap, sleeping in Grandma's arms for the morning nap, the 6 oz bottle before bed or the talk Colin had with Maddie before bed? We'll never know but keep them coming Maddie.

Day 29

Final Dose 11/2: The evening of 11/2 Colin celebrated his last dose of Pepcid and Dexamethasone (steroid). Once again he took it without any trouble with his yogurt. Below is a picture of all the meds Colin took twice a day to this point.

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Pepcid - coats the stomach for the steroid

Dexamethasone - steroid (2 pills)

Sulfamethoxazole - helps prevent pneumonia

Mirilax - prevents constipation

Emla - cream numbs his port

Rough Night 11/2: Colin was up a lot throughout the night, could it have been because Mommy and Daddy told Colin he was going to the doctor in the morning?

Day 29 Chemo Treatment - 11/3: Colin had to fast since midnight and started asking for milk around 4 am ... he was not a happy camper. We quickly packed up and headed down to Yale at 7:30.. we were about half an hour early which is a Westbrook trait however this was part of Mommy and Daddy's strategy ;) Around 9:30 Colin had a chemo spinal tap and a bone marrow aspiration. Once again he held both Mommy and Daddy's hands while looking into our eyes. The doctors and nurses say these procedures are harder for Mommy and Daddy to watch then it is on Colin. The procedure took a little longer than usual so Mommy and Daddy asked a bunch of questions. All was fine, just another doctor's style.

ER Visit 11/3: Colin's treatment area bled more than usual so after two phone calls to the clinic they advised us to head down to the ER to have it checked. We arrived around 6:00pm. Mommy went in to Register and Daddy and Colin followed however he noticed everyone in the ER wearing masks so they stayed in the doorway until the Nurse asked us to wait in the car until a room was available. This was a precaution because of the flu. Within 15 minutes she came outside and asked us to come in. Mommy, Daddy and Colin all wore our masks as we entered the ER. Once in the room we spoke to numerous nurses and doctors who were in touch with Colin's Oncology team. Colin had his first ultra sound to ensure he wasn't bleeding internally - results came back clear. Colin also had another blood draw and confirmed his counts were the same as in the morning which was good news. All home and in bed by midnight.

Day after treatment: Today Colin had a nice sleep in, waking up at 9:15. He was still pretty hungry but Mommy and Daddy saw a glimpse of Colin's true happy go lucky personality coming back as the steroids start to leave his body.

We'll Miss You Nanny

On Friday October 30th Colin and Maddie's Great Grandmother passed away. They were so fortunate to have two Great Grandmother's and a Great Grandfather to share the beginning of their lives with. Nanny lived in upper state NY (with Aunt MaryLynn and Uncle George) and most recently came to CT to attend Auntie Courtney's wedding where she had the time of her life. We now know she will be watching over Colin and will see him through this journey.

We love you Nanny and will miss you. Whenever we see a swan we'll think of you.

Nanny, Papa, Auntie Courtney, Uncle Jack, Mommy, Colin and Maddie

4 generations represented!

Nanny meets Maddie for the first time